Spinal muscular atrophy: Tragic tale of two babies called Oakley
Before Matilda was one, her parents were told she wouldn’t live to the age of age...
A couple are in the battle of their lives to raise $3.2 million
Expensive treatment could be the difference between life and death
Severe neuromuscular condition requires 24/7 care.
"My daughter had the worst form of the disease”
They want to talk about what it is killing her
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