Moved by Monroe's story, Premier announces donation
MONROE Mills, the little girl who is allergic to sunlight, has touched the heart of a nation and that of a state premier.
After reading of the toddler's plight in the Advocate, NSW Premier Mike Baird was so moved by Monroe's story he investigated how the government could help to make life more comfortable for the two-year-old from Nambucca Heads.
Member for Oxley Andrew Stoner and Parliamentary Secretary for Regional Health Melinda Pavey MLC yesterday announced a $10,000 donation to the Miracle for Monroe fund.
It has been almost a year since Monroe's mother Sarah went public, telling of her heartache at having to watch her daughter live a life indoors, underneath a full-body stocking or in extreme pain.
Since that time Sarah said the hope of something else for Monroe has taken rise from people's generosity.
"We are so overwhelmed with the support coming in to help with Monroe's fundraiser," Sarah said.
"It's simply life changing and overwhelming to know she has had such an effect on other people.
"I'm so humbled to see such lovely support pour in from our local community and even other donations from all over Australia."
Living with a rare form of eczema known as photo-aggravated eczema, Monroe has also been diagnosed with an allergy to the sun known as solar urticarial.
The Miracle for Monroe fundraising campaign has netted almost $20,000 in donations with a further outpouring of support for the family since Channel 9 took her story to a national audience.
"I am pleased that the premier, whilst on holidays in the region over Christmas, saw the story in the local paper and the struggles the family were experiencing in managing Monroe's condition," Ms Pavey said.
Mr Stoner said complete strangers had been moved by a mother's determination to create a better life for her child.
"There are many people within our community suffering from ongoing illness and conditions, but when a young child is affected, the circumstances are especially challenging," Mr Stoner said.
The funds are being used to install a specialised bath for Monroe and there's hope the family's sunroom will be rebuilt to give Monroe a place of her own to play.
A fundraiser will be held to celebrate Monroe's third birthday at Tabatinga on March 29.