Brave Malakai needs a new esophagus at nine months' old
BRISBANE'S Royal Children's Hospital has been the only home Malakai Langman has known since his birth.
The nine-month-old has had an uphill battle since coming into the world prematurely at 30 weeks.
Malakai was born with a rare genetic condition known as tracheo esophageal atresia, meaning there is a long gap between where his esophagus ends and his stomach begins.
But mum Tammy said her baby was always happy.
"He is always chatting and he's a very bright kid," she said
Malakai had surgery the day after he was born to try to correct the condition, but had to stay in hospital for more than seven months. But after a long wait, Tammy and dad Daniel got to take their bundle of joy home to Rockhampton.
After only two weeks, complications brought Malakai back to the hospital.
The couple have now sold everything they had in Rockhampton and moved to Brisbane permanently.
"We had to completely move to Brisbane for his needs," Tammy said.
"The special care he needs . . . Rockhampton just doesn't have," she said.
"He's been here (the hospital) all his life, except for two weeks; it's too hard to travel back and forth, to get him what he needs."
At the moment, the family is living at Ronald McDonald House.
Tammy said: "The Ronald McDonald House is great; he's been here nine months basically."
She said the support they had received was excellent, although the family could still use a helping hand, as they had nowhere to call home, after selling everything to move to Brisbane.
Along with needing a place to live, Tammy said there are expensive medical costs.
"Just to get the hospital cot he needs, is about $3000, we need his cot to be able to move and it needs IV poles," she said.
Malakai has been fighting for his life through six operations and will battle a further two in the near future.
Tammy told The Morning Bulletin Malakai would have further surgery this month to fix complications with his bowel.
After that surgery, he'll need a new esophagus, so the family still have a long road ahead of them.
Tammy said that it was vital the family find somewhere to live close by in Brisbane.
"When we do get out, he'll be coming back into the hospital for check-ups," she said.
To find out how you can help Malakai, go to the Facebook page, Supporting Malakai Langman.
- Esophageal atresia is a disorder of the digestive system in which the esophagus does not develop properly.
- The esophagus is the tube that normally carries food from the mouth to the stomach.
- The condition is a congenital defect, which means it occurs before birth.
- Esophageal atresia occurs in about 1 out of 4000 births.